There are an awful lot of places around the UK that offer free holidays and mini breaks for children with cancer and their families. They are often close to major hospitals, should the need for a visit arise, and the majority are owned or operated by people who have experienced childhood cancer in some way. […]
UK Holidays for Children With Cancer Read More »
The first full week of February is feeding tube awareness week and until my own child needed a nasogastric tube (NG tube) I hadn’t really come across them very much. Many children who go through treatment for cancer will require tube feeding at some stage, mainly due to loss of appetite. One of the main
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Becoming a chemo mum has a huge impact on your life. Not least because you spend vast quantities of time worrying about all your children. When I’m not worried about the health and well-being of the Dinosaur, I’m worried about the Unicorn and the impact all of this is having on her. On a day-to-day
A Day In The Life Of A Chemo Mum Read More »
We wanted to throw a birthday party for the Dinosaur this year because he’s never had one before but because he has cancer, we needed a non-soft play party. There are a few reasons why we’ve never thrown him a party. First, he was too young so a party seemed a bit pointless, then the
Non Soft Play Birthday Party Ideas Read More »
For the Dinosaur’s 5th birthday we decided to throw him a birthday party. He’s never had one before because he was either too young or there was a global pandemic raging! Due to his cancer diagnosis, we couldn’t take the easy route and have a soft play party where they arrange everything except for the
Children’s Disco Birthday Party Read More »
When your child has leukaemia, they have to have a weekly blood count to monitor their health. Chemotherapy can affect blood production so the full blood count (FBC) can detect whether they need either a red blood cell or platelet transfusion. The FBC also checks the level of neutrophils and white blood cells in the
As it is Childhood Cancer Awareness Month & Blood Cancer Awareness Month, I thought I’d do an A to Z on childhood cancer. This won’t be exhaustive as I’m only going to highlight one thing per letter of the alphabet but I hope that it will raise awareness of what life is like for a family living with
A To Z of Childhood Cancer Read More »
Trigger warning: this is a deeply emotional post and talks about my fears of my child dying. Today is the Dinosaur’s 5th birthday, we have a lot of fun things planned to celebrate. As he’s only just started school he’s finishing at lunchtime so when I pick him up I’m going to take him to
I’ve been sharing some of our Acute Lymphoblastic Leukaemia journey since the Dinosaur was diagnosed in February 2022 (read more here). I thought it would be helpful to start sharing a little more of the day-to-day as this is a long treatment process. For us, the end of treatment will be in March 2024 provided
Week 17 – ALL Chemotherapy Read More »
Receiving a childhood cancer diagnosis changes your entire life instantly, not only do you need to come to terms with that but you also need to learn what feels like an entirely new language of medical jargon so that you know what’s going on. This cancer terms glossary explains what these words and acronyms mean.
Cancer Terms Glossary Read More »
