When your child is diagnosed with cancer, life becomes an endless cycle of hospital appointments, treatments, and clinical settings. Raines Retreat, a holiday home provided by Children with Cancer UK, offers families affected by childhood cancer something they desperately need: a safe space away from hospitals where they can simply be a family again. After […]
Our Stay At Raines Retreat By Children With Cancer UK Read More »
As a parent, I think we can all agree on one thing: family time is precious. But for families juggling the immense stress and emotional toll of a child battling a life-threatening illness, getting a simple, worry-free holiday seems like an impossible dream. The endless hospital visits, the financial strain, the constant fear—it’s exhausting, isolating,
Our Stay at Donna’s Dream House Charity, Blackpool Read More »
On the 13th and 14th of September 2025, we were lucky enough to be invited to Stoke Mandeville Stadium (the birthplace of the Paralympics) in Aylesbury to attend Emmett’s Genies Year in a Day event. We arrived at midday on Saturday and left at midday on Sunday, and in that whirlwind 24 hours, we celebrated an entire year in
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Disclaimer: First and foremost, I must clearly state that I am not a doctor and have no medical training; this is purely a guide to the ALLTogether 1 research trial from my perspective as a parent of a child who has been part of the study. All views expressed are my own and are not
ALLTogether 1 Trial – A Parent’s Guide To Treatment Read More »
If you’re a parent in the world of bone marrow transplants, you know “the wait.” It’s the wait for the complete blood cell counts to come back. You hold your breath, cuppa going cold on the side, and just pray for good numbers. In the early days, you’re laser-focused on red blood cells, white blood
The Importance of CD4 After Bone Marrow Transplant Read More »
When the Unthinkable Happens: How to Support a Friend When Their Child Has Cancer It’s the message that stops your world. The phone call that sucks the air from your lungs. Your friend, someone you laugh with, share school run stories with, and navigate the wild world of parenting alongside, tells you the unthinkable has
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Are You Drowning in the Maternal Caregiver Mental Load? You’re Not Alone (And We Can Fix It!) Okay, mamas. Picture this: you’re trying to reply to a work email (or, let’s be real, scroll Instagram for a nanosecond of peace) while simultaneously remembering that it’s bin day, little Timmy needs his permission slip signed, you’re
Navigating the Motherhood and Caregiver Mental Load Read More »
Okay, mamas, papas, and caregivers, let’s talk about something truly special today. Something that brings a rainbow of colour into what can sometimes be a very grey journey: the incredible Beads of Courage program. If you’ve walked the path of childhood illness, or know someone who has, these tiny treasures might already hold a huge place in
A Parent’s Guide to The Beads of Courage UK Program Read More »
Bristol Starlight Ward is a specialised haematology and oncology ward within Bristol Royal Hospital for Children. It is part of the University Hospitals Bristol and Weston NHS Foundation Trust and is the principal treatment centre for paediatric oncology patients from the following areas: Bristol Royal Hospital for Children is the central hub of an extensive
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If you are reading this then the chances are that you know our story and how we got to relapse. For those who don’t, I’ll give you a quick recap. On 4th February 2022, my son was diagnosed with Acute Lymphoblastic Leukaemia. He was 4 years old. What followed was just over two years of
Relapse – A Nightmare Come True Read More »
